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DiseaseResearch Study Main I/EStudy TypeCT.gov LinkPIPrimary CoordinatorPC NumberBack-Up CoordinatorBC Number
GN - all typesGDCN RegistryKidney disease, healthy controls, disease controlsRegistry, BiobankNAFalkcandace_henderson@med.unc.edu919-445-2623lmccabe@email.unc.edu919-445-2635
Monoclonal GammopathyRegistry of MGRSAll monoclonal gammopathy with renal involvmentRegistryNAHladikanne_froment@med.unc.edu919-445-2622jordano@med.unc.edu919-445-2672
ANCAPathobiology of ANCANew or flaring ANCATranslationalNAFalkcandace_henderson@med.unc.edu919-445-2623kristin_brock@med.unc.edu919-445-2730
ANCACD5 WATCH (B cell recovery)1 month in remission (after 1st treatment or 1st relapse in AAV)DeviceNCT03906227Derebailsandy_grubbs@med.unc.edu919-445-2658anne_froment@med.unc.edu919-445-2622
ANCALung function in ANCA Vasculitis patientsall AAV having done or willing to do a spirometry testObservationalNAHendersonanne_froment@med.unc.edu919-445-2622emmie_cole@med.unc.edu919-445-2627
MNREBOOT (belimumab and rituximab)primary MN biopsied in last 3 years; age 18-75; eGFR > 40; proteinuria > 4g/day; BP < 140/90Phase 2NCT03949855Derebailanne_froment@med.unc.edu919-445-2622
MN, MCD, FSGSNEPTUNE ( Nephrotic Syndrome Study Network)Must be enrolled PRE BIOPSY; UPCR≥1.5Observational; BiobankNCT01209000Derebail/Gibson (Peds)jordano@med.unc.edu919-445-2672sandy_grubbs@med.unc.edu919-445-2658
MN, MCD, FSGS, IgACureGN (Cure Glomerulonephropathy Network)Biopsied in the last 5 years; no diabetes at the time of biopsyObservational; BiobankNAMottlmaggie_dangelo@med.unc.edu919-445-2682caroline_poulton@unc.edu919-445-2636
FSGSPODO (PF-06730512)18-70 yo- Primary FSGS, eGFR> 45; UPCR> 1.5Phase 2NCT03448692Mottlanne_froment@med.unc.edu919-445-2622emmie_cole@med.unc.edu919-445-2627
FSGSVX-147 APOL1 inhibitorIdiopathic FSGS, eGFR >30, ages 18-65Phase 2aNCT04340362Derebail candace_henderson@med.unc.edu919-445-2623
FSGSLIPOSORBER LA-15Primary FSGS, up to75 yo, when weight is >15kg and eGFR> 45 & standard treatment unsuccessful OR patient is post-transplantDeviceNCT02235857Jainanne_froment@med.unc.edu919-445-2622
IGANenVISion (VIS649)>=18yo; IgAN, eGFR> 44; UPCR> 0.75- no T1 diabetes. Controlled T2 OK. On max ACEi or ARB. Not on steroid for at least 8 weeks.Phase 2NCT04287985Jainanne_froment@med.unc.edu919-445-2622 jordano@med.unc.edu919-445-2672
IGANRavulizumab IV for IgANage 18-75; primary, rapidly progressive IgAN; eGFR <30; proteinuria > 1gm, uncontrolled HTN, no immunosuppression in last 6 monthsPhase 2NCT04564339Mottlsandy_grubbs@med.unc.edu919-445-2658
LUPUSMiSLE - Mesenchymal Stem Cells for refractory lupus BILAG A or B, Sledai score > 5, completed 6 months induction therapyPhase 2NCT02633163Sheikhsandy_grubbs@med.unc.edu919-445-2658julie_walker@med.unc.edu
LUPUSRavulizumab IV for lupus nephritisage 18-75; clinically active LN Class III or IV; eGFR <30; proteinuria > 1gm, uncontrolled HTNPhase 2NCT04564339Mottlsandy_grubbs@med.unc.edu919-445-2658
DKDTRIDENTDiabetes, >= 18yo, getting a biopsy: must be enrolled PRE-BIOPSYObservational; BiobankNCT02986984Mottlemmie_cole@med.unc.edu919-445-2627anne_froment@med.unc.edu919-445-2622
Undergoing CEUSContrast Enhanced Ultrasound of the Kidneys RegistryPatients undergoing CEUSRegistryNAChangemmie_cole@med.unc.edu919-445-2627anne_froment@med.unc.edu919-445-2622
In-patient dialysisPLUS-HDin-patient dialysisObservationalNAChangmatthew_tugman@med.unc.edu919-445-2699 jordano@med.unc.edu919-445-2672

Contact by phone: Emmie Cole 5-2627, Maggie D’Angelo 919-445-2682, Anne Froment 5-2622 , Sandy Grubbs 5-2658, Candace Henderson 5-2623 , Jordan Ormond Foster 5-2672; Julia Narendra 5-2686, Caroline Poulton 5-2636, Matthew Tugman 5-2699