Patient Education Podcasts

Patient Education Podcasts

Link to Patient Stories

ANCA Vasculitis

Dr. Ron Falk, at the May 2008 patient support meeting of the Vasculitis Foundation- North Carolina/Raleigh chapter, engages in a conversation with Vasculitis patients. Questions and answers pertain specifically to the kidney disease ANCA Vasculitis. During this meeting, Dr. Falk begins by addressing questions that his patients frequently ask and then opens up the discussion by taking questions from patients. In this conversation, Dr. Falk covers various topics, which are divided into several audio tracks. This has been translated into Spanish and Chinese.
ANCA Vasculitis click to enlarge Ron Falk, MD

Listen to the full length recording (1 hr 9 min)

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Listen in Chinese 中文收听

ANCA: Living a Full Life with ANCA Vasculitis

Dr. Falk is joined by ANCA patient Dianne Shaw in this podcast. They discuss ways that an ANCA patient can improve the quality of his or her life. Topics include: *Managing Your Disease *Healthy Behaviors *Finding Support *Finding Your "New Normal" *Managing Flares *Keeping Vasculitis in its Place
ANCA: Living a Full Life with ANCA Vasculitis click to enlarge Ron Falk, MD

Listen to the full length recording (29 min)

ANCA Vasculitis Pathology

This video features J. Charles Jennette, MD and patient Dianne Shaw, and they discuss what ANCA Vasculitis is, what causes it, and what it looks like in a biopsy. Dr. Jennette is Brinkhous Distinguished Professor and Chair of Pathology and Laboratory Medicine, Professor of Medicine, and Chief of Pathology and Laboratory Medicine Services at UNC Hospitals.  Dianne Shaw is past-president of the Vasculitis Foundation and a member of the Education & Awareness Council and the Vasculitis Foundation Research Committee.
ANCA Vasculitis Pathology click to enlarge J. Charles Jennette, MD

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ANCA Vasculitis: Treatments

Treatment options and issues related to ANCA Vasculitis are discussed here in these podcasts featuring Dr. Ron Falk.
ANCA Vasculitis: Treatments click to enlarge Ron Falk, MD

Listen to the full length recording (34 min)

Anti-GBM

These podcasts feature Dr. Ron Falk discussing the kidney disease Anti-Glomerular Basement Membrane Disease (Anti-GBM.) He answers questions from a patient which include: What is Anti-GBM Disease? Is Anti-GBM the same as Goodpasture's Syndrome? Is Anti-GBM caused by inhaling chemicals? How do you treat Anti-GBM Disease? Will Anti-GBM Disease come back in a transplant? Am I contagious?
Anti-GBM click to enlarge Ron Falk, MD

Listen to the full length recording (7 min)

Being There For Your Friend with Vasculitis

When someone has a friend or family member who has been diagnosed with vasculitis, that person might not know what to say or what to do. Delesha Carpenter, PhD, MSPH helps friends of vasculitis patients understand what it is like to live with the disease in this two-part podcast featuring Dr. Ron Falk, UNC Kidney Center Director and Dianne Shaw, Past President of the Vasculitis Foundation and vasculitis patient. Dr. Carpenter is an Assistant Professor in the Division of Pharmaceutical Outcomes and Policy at the Eshelman School of Pharmacy at UNC Chapel Hill.
Being There For Your Friend with Vasculitis click to enlarge Delesha Carpenter, PhD, MSPH

In Part One, "Understanding Vasculitis and How it May Affect Your Friend," Dr. Carpenter asks Dr. Falk some basic questions about vasculitis and what people with the disease typically experience. In Part Two, "Ways You Can Maintain a Healthy Friendship," Dr. Carpenter talks with Dianne Shaw about some specific ways that friends can help maintain a healthy friendship with someone who has vasculitis.

Part One: Understanding Vasculitis and How it May Affect Your Friend

(16 minutes 53 seconds)

Part Two: Ways You Can Maintain a Healthy Friendship

(15 minutes 25 seconds)

Celeste Castillo Lee Will Be Remembered for Her Work in Patient Engagement

Celeste Castillo Lee shared her work in patient engagement with the University of North Carolina in October and November of 2016; she gave a presentation at UNC Nephrology Grand Rounds as well as an interview with Dr. Ron Falk in an audio podcast. Celeste shared her personal journey with end stage kidney disease, her path to engagement and advocacy in the kidney community, and her vision for a health care system strengthened by meaningful patient, provider, and staff partnerships. In December of 2016, she gave an interview with Lori Hartwell at RSNHope about choosing hospice. These presentations can be accessed here.
Celeste Castillo Lee Will Be Remembered for Her Work in Patient Engagement click to enlarge Celeste Castillo Lee / Photo by Rochelle Moser

About Celeste 

Celeste Castillo Lee is an individual who has battled end stage kidney disease for over 30 years and currently receives in-center hemodialysis. She has been on peritoneal dialysis, hemodialysis, and had a transplant for 10 years. She is a former faculty member for the Institute for Patient and Family-Centered Care and a patient advisor to non-profit health organizations, governmental agencies, research projects, peer mentor and advocate nationally, and internationally; this includes serving as Board Member and Chair of the Patient & Family Partnership Council for the Kidney Health Initiative, a public/private partnership with the FDA and the American Society of Nephrology, a member of the Phase I National Patient Advisory Council for PCORnet, and a member of the steering committee for the Vasculitis Patient-Powered Research Network (V-PPRN). Celeste is the former Program Manager for Patient and Family Centered Care at the University of Michigan Health System where she provided leadership, strategy and implementation of Patient and Family Centered Care philosophies, practice and change. This included administrative and operational oversight for PFCC Program, Adult Services, peer mentor strategic coordination, quality, program development, education, performance improvement, research collaborations with stakeholders, and care models. She is committed to helping health systems, academic medical centers, industry and others partner with patients and families to re-envision the future of healthcare. 

In 2010, when Celeste was the chief of staff to the President & CEO of Duke University Health System part of her responsibility was to collaborate on Patient and Family Centered Care initiatives. She is convinced of the transformative power of collaborations between patients, families, staff, faculty and community stakeholders to drive research forward.

"We Are All In This Together. We Are Better Together" : UNC Nephrology Grand Rounds Presentation

Celeste recorded this one hour lecture on 11/2/2016 at our UNC Nephrology Grand Rounds.

Download video.

"Celeste Lee on the Power of Patient Engagement" : Podcast with Dr. Ron Falk

Celeste Lee on the Power of Patient Engagement
Celeste and Daniel Lee, PhD / Photo by Rochelle Moser

Dr. Falk interviews Celeste Lee in this audio podcast on patient engagement. Celeste is described by Dr. Falk as an "astonishing leader and ferocious advocate for patient engagement," and discusses the process of getting patients to become advocates for their health. She is also joined by her husband Daniel Lee, PhD on a discussion about being a caregiver and including patient engagement in the health system.

Topics include:

  • What is patient engagement, and what it means to Celeste Lee
  • Advice to patients to become advocates for themselves
  • If the patient is the driver how to help physicians know that they are passengers
  • Advice Celeste would have given her 17-year-old self
  • The ups and downs of being a caregiver
  • Educating providers in this engagement approach
  • How to convince patients to want to be peer advisors
  • How to design a health system that includes patient engagement
  • How Celeste's work has helped her in life

Read full transcript and listen to the individual tracks here 


"Choosing Hospice" 
: KidneyTalk Podcast

Lori Hartwell, President and Founder of RSNHope interviewed Celeste in December of 2016 about choosing hospice and how she is preparing for end of life.

Listen to "Choosing Hospice" on RSNHope.

Celeste also recorded a podcast in 2015 for RSNHope on "Defining Patient and Family Centered Care" and wrote this article, "Aging in Dog Years".


Kidney Health Initiative Tribute

 

View video on YouTube

David Cole's Story

David Cole shares his story in this new podcast on how he went from a very healthy athlete, to a person diagnosed with kidney disease. And then, how his life changed after having a kidney transplant. David has organized the Raven Rock Ramble, a 100-mile bike ride which promotes awareness of organ donation issues, and benefits the UNC Kidney Center. The 14th Raven Rock Ramble is on May 3, 2015. This podcast features Dr. Ron Falk, who interviews David about his experiences with kidney transplant, his life as an athlete, and promoting awareness of organ donation issues.

Listen to the full length recording (20 min)

David Cole racing   David Cole on the podium   David Cole and Susie Hosman

Diabetic Kidney Disease

These podcasts feature Dr. Amy Mottl discussing diabetic kidney disease, or diabetic nephropathy. She answers questions from a patient such as "What is diabetes?", "What kind of damage does diabetes do to my body?" and "What are my options for treatment?"
Diabetic Kidney Disease click to enlarge Amy Mottl, MD, MPH

Listen to the full length recording (14 min)

Fibrillary Glomerulonephritis

These podcasts feature Dr. Ron Falk discussing the kidney disease Fibrillary Glomerulonephritis, or Fibrillary GN. He answers questions from a patient which include: What is Fibrillary GN? Why do I have protein in my urine? What are the symptoms of Fibrillary GN? How did I get it? How do you treat this disease?
Fibrillary Glomerulonephritis click to enlarge Ron Falk, MD

Listen to the full length recording (12 min)

FSGS - Focal Segmental Glomerular Sclerosis

These podcasts feature Dr. Ron Falk discussing the kidney disease FSGS. He answers questions from a patient such as "What is FSGS?", "How did I get the disease?" and "Is there a cure for FSGS?"
FSGS - Focal Segmental Glomerular Sclerosis click to enlarge Ron Falk, MD

Listen to the full length recording (8 min)

Oprima aqui para escuchar en Espanol (8 min)

Healing Through Acupuncture

Although not part of the traditional Western medicine regime, acupuncture can be helpful in the healing process of a patient. In this podcast, Dr. Falk speaks with Dr. Wunian Chen, an acupuncturist and Chinese medicine physician. Vasculitis patient Dianne also participates in the discussion. Kidney patients, vasculitis patients, or any patient might find this conversation helpful.
Healing Through Acupuncture click to enlarge Wunian Chen, MD

Listen to the full length recording (16 min)

"Hey Doc, How Are My Kidneys?"®

The UNC Kidney Center has produced an audio podcast featuring Dr. Ron Falk, in which he discusses the meaning behind the slogan “Hey Doc, How Are My Kidneys?”® The release of this podcast coincided with the 2014 American Society of Nephrology “Kidney Week”, an annual national meeting that recently took place in Philadelphia from November 11-16. The meeting was expected to draw more than 13,000 kidney professionals from around the world. UNC Hospitals and the UNC Kidney Center partnered together to sponsor the official meeting lanyards, which prominently feature the “Hey Doc” slogan.
"Hey Doc, How Are My Kidneys?"® click to enlarge Official meeting lanyard for the 2014 American Society of Nephrology Kidney Week
"Hey Doc, How Are My Kidneys?"® click to enlarge Ron Falk, MD

The release of this podcast coincided with the 2014 American Society of Nephrology “Kidney Week”,  an annual national meeting that recently took place in Philadelphia from November 11-16.  The meeting was expected to draw more than 13,000 kidney professionals from around the world.  

UNC Hospitals and the UNC Kidney Center partnered together to sponsor the official meeting lanyards, which prominently feature the “Hey Doc” slogan.

The audio podcast discussion will give listeners a deeper understanding of the slogan and why it’s important. Dr. Falk explained that promoting the slogan at the national meeting on the lanyards would help spread the message.

“My hope is, is that with that message around their neck, that message will then translate to what they tell their patients. To have family members, ask the question, to their own providers, “Hey Doc, How are My Kidneys?”®  It is an effort to continue the Kidney Education Outreach Program, not just in our state, but in a broader international context.” 

Listen to the full length recording (14 min)

IgA Nephropathy

These podcasts feature Dr. Ron Falk discussing the kidney disease IgA Nephropathy. This covers questions patients might frequently ask when first diagnosed with IgA, such as "What is IgA Nephropathy?" and "How did I get it?" and covers other questions of interest such as "Are fish oils helpful?" and "Should patients have their tonsils removed?"
IgA Nephropathy click to enlarge Ron Falk, MD

Listen to the full length recording (14 min)

Immunizations Discussion

UNC Kidney Center Director Dr Ron Falk is joined by Dr. David Weber, Professor of Medicine and Pediatrics, School of Medicine and Professor of Epidemiology, Gillings School of Global Public Health at UNC. In this recording, "Immunizations and the Immunocompromised Patient," Drs Falk and Weber discuss immunizations and the recommendations for patients whose immune systems are compromised. Dr Falk poses questions for Dr Weber that are frequently asked by patients, and discussions include general recommendations as well as specific recommendations for the flu shot, DPT, pneumonia, Hepatitis B, Hepatitis A and HPV vaccine.
Immunizations Discussion click to enlarge David Weber, MD, MPH
Immunizations Discussion click to enlarge Ron Falk, MD

Listen to the full length recording (28 min)

Integrative Medicine Discussion

In this podcast, Dr. Ron Falk discusses integrative medicine with Dr. Remy Coeytaux, an integrative medicine physician who practices at the Integrative Health Center of Chapel Hill, who blends traditional and complementary or alternative methods in caring for patients. Also participating in the discussion is vasculitis patient Dianne. Kidney patients, vasculitis patients, or any patient might find this conversation helpful.
Integrative Medicine Discussion click to enlarge Remy Coeytaux, MD, PhD
Integrative Medicine Discussion click to enlarge Ron Falk, MD

Listen to the full length recording (25 min)

Kidney Disease: A Patient's Perspective

Paul was still a teenager when he was diagnosed with kidney disease. His kidneys stopped working and he went on dialysis for 9 months before receiving a kidney transplant from his sister. Twelve years after receiving a kidney transplant, Paul shares his experiences with kidney disease in this conversation with Dr. Ron Falk.

Listen to the full length recording ( 16 min)

Kidney Transplant: Two Sisters

This podcast features two former UNC kidney transplant patients, Marisa McLeod, who donated her kidney to her sister Carmen Conry in 1991. Eighteen years after their transplant, they share their experience with Dr. Randy Detwiler, who is director of the UNC Kidney Transplant program. They both discuss the transplant, how it has impacted their lives, and each share a message for kidney patients and for potential kidney donors.
Kidney Transplant: Two Sisters click to enlarge Randy Detwiler, MD

Listen to the full length recording (12 min)

Marisa McLeod and Carmen Conry

Membranous Nephropathy

These podcasts feature Dr. Ron Falk talking with a patient about the kidney disease Membranous Nephropathy. Questions and answers include, "What is Membranous Nephropathy?", "How did I get this disease?" "What symptoms might I experience?", "What types of treatments are available?" and "Will I get better?" Dr. Romulo Colindres provides the Spanish translations.
Membranous Nephropathy click to enlarge Ron Falk, MD

Listen to the full length recording (11 min)

Oprima aqui para escuchar en Espanol:

Membranous Treatments

Dr. Ron Falk discusses issues surrounding treatment for the disease Membranous Nephropathy. Discussions include topics such as cholesterol-lowering drugs, blood thinners, and steroids, among many others. Dr. Romulo Colindres provides the Spanish translations.
Membranous Treatments click to enlarge Ron Falk, MD

Listen to the full length recording (13 min)

Oprima aqui para escuchar en Espanol: Tratamiento de la Nefropatia membranosa

Minimal Change Disease

These podcasts feature Dr. Ron Falk discussing the kidney disease Minimal Change Disease, with a parent of a child who has the disease. He answers questions such as "What causes Minimal Change Disease?" and "What steps can I take to ensure optimal health?"
Minimal Change Disease click to enlarge Ron Falk, MD

Listen to the full length recording (9 min)

Stress Management

The UNC Kidney Center has produced a five-week stress management techniques podcast aimed at patients and their families. The video podcast features William Frey, Assistant Manager of UNC Training and Talent Development, Instructor of UNC’s Mindfulness based Stress Reduction program, publisher of Stress Tips, and certified professional co-active coach.
Stress Management click to enlarge William Frey, CPCC

With the help of these five short episodes, patients identify their personal symptoms of stress and learn to personalize stress management techniques to their everyday routine. Patients are able to follow along with the podcast through a provided workbook.

In Episode One, “The Cost of Stress”, Frey reviews the definition and dangers of stress. He also identifies common symptoms and warning signs and differentiates between episodic and chronic stress.

In Episode Two, “Breath Awareness”, the importance of breath in stress reduction is highlighted. Patients are introduced to various breathing techniques that allow for an aware mind and relaxed body.

In Episode Three, “Gentle Stretching”, Frey addresses the tension that accumulates with stress and introduces gentle stretching techniques that can relieve built up tension.

In Episode Four, “Observation of Thoughts”, thoughts are identified as the driving forces behind behavior. The importance of thought awareness is emphasized and practiced through silent meditation.

In Episode Five, “Keep Up Your Practice”, Frey reviews ways which patients can integrate stress relief practice into their everyday routines.

Download workbook to guide you through

Watch Episode One. (10 minutes 3 seconds)

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Watch Episode Two. (9 minutes 13 seconds)

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Watch Episode Three. (14 minutes 9 seconds)

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Watch Episode Four. (10 minutes 33 seconds)

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Watch Episode Five. (7 minutes 48 seconds)

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